Amanda Hulejczuk, a Parkinson’s Nurse Consultant, has been appointed as co-clinical nurse lead for the Parkinson’s Excellence Network, having driven the successful development of the Parkinson’s nurse led service at University Hospitals Sussex NHS Foundation Trust.
Amanda expressed her honour at being part of a national charity dedicated to transforming health and care services for people with Parkinson’s nationally. Amanda said: “I hope to use my experience to promote the importance of the Parkinson’s specialist nurse role across the UK, so that all people with Parkinson’s have the same access and quality of care, wherever they live.
“This is a great personal achievement, but it also promotes the excellent work our Parkinson’s team at UHSussex are currently doing. This role not only elevates our work at UHSussex but also contributes to raising standards nationally, so that all patients receive the care they deserve.”
Parkinson’s disease is a progressive neurological condition in which parts of the brain become progressively damaged over many years.
With more than 20 years of experience as a Parkinson’s Specialist Nurse, Amanda is a strong advocate for the role and its importance in the care and treatment of people with Parkinson’s
Amanda has been instrumental in the development of a nurse led Parkinson’s service at UHSussex which aims to enhance the quality of life and experience for people with Parkinson’s by sharing information and providing support.
She said: “Parkinson’s and other associated disorders bring with them complex health and social care needs for this patient group. Evolving over time, our nurse led service strive to meet the needs of patients by providing comprehensive, personalised care. Our dedicated team of Parkinson’s specialist nurses work dynamically to adapt to the changing needs of our patients, ensuring they receive the best possible support and treatment throughout their journey.”
The specialist service liaises with GPs, consultants and any other health care professionals to address individual needs, advise on medication adjustments following discussions with colleagues, and provide information on Parkinson’s and appropriate care services and therapies.
The role of the Parkinson’s specialist nurse and the nurse led service within the Trust has been greatly championed by colleagues across services, particularly by neurologists and care of the elderly physicians.
Part of the Parkinson’s UK charity, the Parkinson’s Excellence Network brings together and supports health and social care professionals to share best practice, provide resources and education, and drive improvements to services for people with Parkinson’s and their families.
Amanda’s leadership in the Parkinson’s Excellence Network is an inspiring step forward, showcasing our Trust’s commitment to improving the care of those affected by Parkinson’s. Her advocacy for the specialist nurse role highlights its significance in ensuring compassionate and specialised care for patients.