The MND Association

The MND Association is the only national charity in England, Wales and Northern Ireland focused on MND care, research and campaigning.

The MND Association:

•  Improves care and support for people with MND, their families and carers.
• Funds and promotes research that leads to new understanding and treatments, and brings us closer to a cure for MND.
• Campaigns and raises awareness so the needs of people with MND and everyone who cares for them are recognised and addressed by wider society.
• Find out more about the MND Association.

Their website is an invaluable resource for; people affected by MND, health and social care professionals and researchers.

MND Association local branches and groups

The MND Association network of local branches offer practical support and advice to people living with MND.

Local branches and groups:

• West Sussex South
• West Sussex North
• East Sussex

Useful resources

• The Sussex Motor Neurone Disease (MND) Care and Research Network – University Hospitals Sussex NHS Foundation Trust
• Information resource for patient and professionals: Gastrostomy tubes
• myBreathing guidance about managing breathing symptoms
• Helps people with MND to review alternative and unlicensed treatments
• Support for people and their families living with rare dementia’s, including  Frontotemporal Dementia
• National Institute for Health and Care Excellence (NICE) A guideline on MND, published 2016
• Chailey AAC Hub: Specialist AAC assessment and provision for Sussex & Surrey
• Environmental controls: East Sussex

What does living with MND look like: Art Therapy in Practice

How the MND art therapy project came about

The art therapy project was initiated in 2020 with funding from the West Sussex South Branch of the MND Association. Since 2024, the East Sussex branch also funds sessions for people affected by MND.

The project’s mission statement was to:

Enable those with MND and their wider circle of people, to creatively express the experience of their every day lives. The project aims to:

• Engage people with MND in a personal creative experience
• Allow those involved with the people with MND to add to this experience
• Develop expression through the collection of drawings, art, words and artefacts in whatever form they may take
• Exhibit some of this work on the MND Association website
• Exhibit some of this work as an exhibition in a local venue