How we help
The Cystic Fibrosis centre at The Alex is a comprehensive service for children and young people with cystic fibrosis. The team also supports the cystic fibrosis teams at Worthing Hospital and St Richard’s Hospital in Chichester.
All aspects of cystic fibrosis care, both inpatient and outpatient, are cared for from diagnosis right through to when patients transition to adult care services. The Cystic Fibrosis Team is a multidisciplinary team of cystic fibrosis specialists including consultants, nurse specialists, physiotherapists, pharmacists, dietitians and psychologists.
Outpatient clinics and reviews
Cystic Fibrosis clinics are held weekly on Friday afternoons and all children with cystic fibrosis are seen at least every three months.
Annual reviews are also done for all children and are comprehensive. They involve a home visit by the cystic fibrosis nurse specialist followed by a morning when all tests are carried out. All the results are analysed by the team and then discussed at a designated annual review clinic with the patient and their family. The annual review clinics are held on Monday afternoons but if need an appointment can also be arranged on other days.
The cystic fibrosis nurse specialists are also available for phone consultations and triage daily.
The team can also arrange referrals or appointments with the endocrine, gastroenterology and liver specialist teams and to the surgical teams all based at The Alex. Any x-rays, CTs and ultrasounds that are needed are all carried out at The Alex too. Bone scans are carried out at the Sussex Osteoporosis Clinic based in Brighton.
Home care from our specialists
We understand that home care and links to home and the child’s life are important. Home visits are carried out by the cystic fibrosis nurse specialists for the annual review and also to provide regular support and advice and where appropriate to carry out clinical procedures in the home. Visits can also take place in schools and nurseries.
The cystic fibrosis specialist physiotherapist can do home reviews and the cystic fibrosis psychologist can also see patients at school if appropriate to do so.
When our young patients transition to adult services, the cystic fibrosis nurse specialist can attend the first adult appointment with the young person to help them with this process.
Some patients may require an inpatient stay for more intensive treatment such as intravenous antibiotics as well as for planned procedures such as bronchoscopy, portacath or gastrostomy insertion.
We make the stay as comfortable as possible for patients and provide individual ensuite rooms on our medical ward on Level 9. These rooms also have a bed for a carer and a fridge. All infection control policies are adhered to at all times.
Meet the team
The team includes consultants, nurse specialists, physiotherapists, pharmacists, dietitians and psychologists.
Paediatric consultants include:
Others in the team include:
- Cathy Warde and Jason Lenton, Cystic Fibrosis Nurse Specialists
- Chris Smith, Cystic Fibrosis Specialist Dietitian
- Lucy Craig, Cystic Fibrosis Specialist Physiotherapist
- Christian Chadwick, Cystic Fibrosis Specialist Pharmacist
- Dr Sally Harris, Cystic Fibrosis Psychologist
- Helen Taylor, Cystic Fibrosis Administrator
Where we are
The team are based on level 4c at the Royal Alexandra Children’s Hospital, Brighton.View the map and directions for The Alex
Nurse Specialist, Cathy Warde 01273 696955 Ext. 62519
Respiratory Nurse Specialist, Jason Lenton 01273 696955 Ext. 62518
Respiratory Nurse Specialist, Carolynn Lorimer 01273 696955 Ext. 62541
CF & Respiratory Nurse Specialist, Leanne Atherton 01273 696955 Ext. 63217
CF Specialist Dietitian, Chris Smith 01273 696955 Ext. 62389
CF Specialist Physiotherapist, Lucy Craig 01273 696955 Ext. 62500
CF Specialist Pharmacist, Christian Chadwick 01273 696955 Ext. 62492
CF Psychologist, Dr Sally Harris 01273 696955
Take a look at our video which will show you what to expect when you come to the Cystic Fibrosis Centre at the Alex.