- The Sussex Motor Neurone Disease (MND) Care and Research Network – University Hospitals Sussex NHS Foundation Trust
- National Institute for Health and Care Excellence (NICE) A guideline on MND, published 2016
- The MND Association
- ALS Untangled: support for people with MND to review alternative and unlicensed treatment.
- myBreathing guidance about managing breathing symptoms
- Gastrostomy tubes – patient and professional resource
- Alternative & Augmentative Communication: Chailey AAC Hub: Specialist AAC assessment and provision for Sussex & Surrey
- Environmental control services:
- Rare Dementia support: For people and their families with rare dementias, including Frontotemporal Dementia.